Cute in his little outfit from Tia Mel.
Hello world...this is my face without tape. My cheeks are really chapped and red since they have been taped for 44 days. Please don't make fun of me :) Love, Kale.
Hopefully in a few weeks he will be off the vent and extubated so he can have his cheeks free all the time.
Biggg yawn!
Snug as a bug!!!Well, here is our little man without tape on his cheeks. What a cutie, right?! It breaks my heart looking at how chapped his poor cheeks are. Not only have his cheeks been taped for 44 days, but when they change the tape they glue the new tape in place so it stays longer. I'm pretty sure at this point his pain tolerance is higher than mine.
Kale had a pretty good day today. He has had two stable blood gases since his vent settings were changed at 2am this morning. He went from 55 breaths per minute to 50. He also went out of the 'assist' mode, so when he initiates a breath on his own now it is up to him to complete the breath. His lung x-ray was still pretty hazy. They changed his steroid treatment from 2 doses of .5ml to 1 dose of .8ml. So, a pretty small change so we are hoping he doesn't even notice it.
His weight today stayed at 2 lbs. 12 oz., which may mean that he's retaining some fluid but he's still on his diuretic so the Drs. aren't concerned with it. His electrolytes looked good today so they continued his sodium mixture he has had the past few days.
Today I was pretty excited because I found a bedding set for Kale's nursery and got a great deal on it. I can't wait to finish setting up his room this weekend. Derc and I got to go out to dinner to Buffalo Wild Wings tonight, and we followed our date with a trip to Target and Menards. That's right, we had a crazy Friday night :)
Thanks for checking in tonight! Thank you for keeping Kale in your prayers, they are being answered every day and we greatly appreciate it!
Oh he is so HANDSOME! It's so great being able to finally see what our grandson looks like - melts our hearts!
ReplyDeleteSounds like Kale continues to be strong. Just wait - he will be so strong later in life!
Praying that his little lungs continue to strengthen and develop.
You two really know how to have a fun Friday night. I mean, BOTH Menards and Target? WOW. You're probably exhausted now! Glad to hear you had a little fun.
Love
Mom and Pete
He is soo adorable! So happy he is such a strong fighter! You and the fam are still in my prayers!
ReplyDeleteI love the picture of Kale sleeping - look how his arms are positioned - one hand resting on top of the arm - smooth forehead with no wrinkles - he looks so ... I can't explain it - and this may sound strange, but he looks like an angelic little baby sleeping in a crib, with no cares. (Note - little kids who get into all sorts of mischief during the day often look like this when they are sleeping - not that I'm predicting "the terrible twos" or anything... LOL)
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