Kale is doing GREAT on the new vapotherm treatment. His gases over the afternoon/night/morning were all very consistent and they feel confident enough in how he is doing to now have another gas until tomorrow morning. They have not made any adjustments or changes to his settings on the vapotherm, he is still at 6.0 liters per minute. We would love to see that number go down to 5 lpm in the next day or so, which would mean he's requiring less oxygen flow to help him breathe. He has been very alert and awake the past day, it seems like he enjoys being able to do things on his own. He has been really steady on this, his oxygen saturation staying pretty consistent!
He got to see his Aunt Sarah, Uncle Z, and Aunt Laura yesterday. He always likes seeing new faces, and I think they enjoyed seeing his face minus all the tape with the vent tube. He just looks so much more comfortable now, I can't wait until our computer is fixed so I can post these pics of his cute little face :) His lip is a bit out of whack since it has been forming around a tube for the past 50 days, it should go back down to normal though.
The Drs. talked about discontinuing his steroids or at least beginning to ween him off starting Monday. Hopefully his lungs are ready for that.
That's about all we have for the day today. It's great to see our little man breathing on his own and doing so well with it, we're so proud of him! Thanks for all of your continued support, we really appreciate it!
Have a great 4th!
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We're SO excited to see Kale (and of COURSE his mom and dad too!) on Monday. Not sure we're going to recognize Kale - he's gained so much weight.
ReplyDeleteWay to go Kale. Keep up the good work.
Love,
Grandma and Grandpa
Hey Baby Kale - we are so glad to hear you are doing so awesome! Great news that you're off the vent and breathing on your own! We LOVED the pics in your outfit from Baby Jack! He says "hi" and keep up the good work! Jim and I can't believe how big Kale is getting. It's so exciting to watch them grow, and just you wait...those chubby cheeks will only get chubbier! We're so happy for you guys and always enjoy reading up on Kale's progress. Have a great 4th and give Kale a kiss from all of us up North! Love ya, Abby, Jim & Jack
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