Better day

Big boy bed!

Cutie pie

Doing good with his pacifier - doing some good training or his bottle

Family pic! Sarah, Justin and Jordan (it's a little dark in the car but he's in there, I promise!) in front of Justin's race car!

TWINS!!!! HAHA - So, for Fathers Day my mom and I got Justin, Derc and Pete the same polo in hopes that we could trick them to go golfing together and they would all show up wearing the same shirt. Well, turns out it wasn't golfing that we were waiting for, just Jordan's birthday party! They had it down to the shorts, sandals and flip flops!! I just kept thinking how my dad would have gotten such a kick out of this and would have had sooo many jokes about them :)

Kale had a better day today, yay! He hasn't had a spell yet today and has been much more stable than yesterday. He is still at 4 lpm and they probably won't turn that down for a few days. He is still off his caffeine and steroids and seems to be doing well.

He is still eating an ounce every 3 hours and was up to 3 lbs. 14.5 oz today, but a lot of that was water weight, so we are hoping that he goes down a little bit tonight.

His cardiologist came in today and was really pleased with how Kale is doing. He said that if he stays in the 90s-100s he may be able to go a while without a pacemaker, at least until he is physically active. But...we're not really holding our breath for it, we'll know a bit more for that plan of action when he gets closer to going home and we have more appts with the cardiologist. But it's great to hear that he thinks he's doing so well!

That's about it for tonight, thanks for checking in!!